USIDNET Database Statistics



Click through the tabs below to view current registry statistics

  • Enrollment by Category
  • Enrollment by Diagnosis
  • Enrollment by Age
  • Enrolling Site Statistics
  • Demographic Statistics

Enrollment by Category

Agammaglobulinemia 443
ALPS 13
Antibody Defect 1974
Autoinflammatory Disease 7
Chronic Granulomatous Disease 553
Class Switch Defect 156
Complement Deficiency 28
DNA Repair 24
Dyskeratosus congenita 2
HLH 56
Hyper-IgE Syndrome 93
Immune Dysregulation 28
Innate Immune Deficiency 85
Mucocutaneous Candidiasis 56
Neutrophil Disorders (non CGD) 12
Other Congenital Defects 1
SCID/CID 448
Thymic Defect 488
Unclassified Immune Deficiency 4
Wiskott-Aldrich Syndrome 250
Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Enrollment by Diagnosis: select a category

Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Enrollment by Age: select a category

Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

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USIDNET has a network of medical centers that contribute patient data to the registry.

Hover over a state to see the amount of patients enrolled in that region. Click on the state to see the associated enrolling sites.

USIDNET collects a number of clinical markers on its participants.

Below, you will find data on some basic demographic statistics for participants enrolled in the registry.

American Indian or Alaska Native 47
Asian or Pacific Islander 89
Black or African American 267
Mixed Race 91
White or Caucasian 3313
Unspecified 914
Hispanic or Latino 350
Not Hispanic or Latino 2287
Unspecified 2084
Female 1736
Male 2712
Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Interested in more detailed information? Consider submitting a registry data query to USIDNET.

Last Update: 3/31/2017