USIDNET Database Statistics



Click through the tabs below to view current registry statistics

  • Enrollment by Category
  • Enrollment by Diagnosis
  • Enrollment by Age
  • Enrolling Site Statistics
  • Demographic Statistics

Enrollment by Category

Agammaglobulinemia 435
ALPS 12
Antibody Defect 1940
Autoinflammatory Disease 7
Chronic Granulomatous Disease 549
Class Switch Defect 154
Complement Deficiency 26
DNA Repair 23
Dyskeratosus congenita 2
HLH 55
Hyper-IgE Syndrome 91
Immune Dysregulation 27
Innate Immune Deficiency 77
Mucocutaneous Candidiasis 54
Neutrophil Disorders (non CGD) 12
Other Congenital Defects 1
SCID/CID 436
Thymic Defect 487
Unclassified Immune Deficiency 4
Wiskott-Aldrich Syndrome 244
Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Enrollment by Diagnosis: select a category

Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Enrollment by Age: select a category

Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

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USIDNET has a network of medical centers that contribute patient data to the registry.

Hover over a state to see the amount of patients enrolled in that region. Click on the state to see the associated enrolling sites.

USIDNET collects a number of clinical markers on its participants.

Below, you will find data on some basic demographic statistics for participants enrolled in the registry.

American Indian or Alaska Native 47
Asian or Pacific Islander 84
Black or African American 265
Mixed Race 51
White or Caucasian 3227
Unspecified 963
Hispanic or Latino 343
Not Hispanic or Latino 2175
Unspecified 2119
Female 1694
Male 2670
Participants enrolled through PICONNECT & awaiting clinician-confirmed data are not included. (more info)

Interested in more detailed information? Consider submitting a registry data query to USIDNET.

Last Update: 1/1/2017