Center for Biologics Evaluation and Research, FDA
www.fda.gov/AboutFDA/CentersOffices/OfficeofMedicalProductsandTobacco/CBER/
The Center for Biologics Evaluation and Research, FDA is a division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. This agency provides information on biological products, such as blood and plasma, including new product approvals, adverse events, product recalls and withdrawals.
National Institutes of Health (NIH)
www.nih.gov/health
The National Institutes of Health (NIH) provide information on a national level about the advances in health, science and medical issues.
NIH Clinical Trials
www.clinicaltrials.gov
ClinicalTrials.gov contains current information on clinical trials being conducted, some of which may be pertinent to primary immunodeficiency diseases.
National Institute of Child Health and Human Development (NICHD)
www.nichd.nih.gov
A division of the NIH, the National Institute of Child Health and Human Development (NICHD) provides general information on children’s health issues, including an in-depth booklet on primary immunodeficiency diseases.
MedWatch
www.fda.gov/Safety/MedWatch/
MedWatch is the FDA Safety Information and Adverse Event Reporting Program.
Vaccine Adverse Events Reporting System (VAERS)
vaers.hhs.gov
The Vaccine Adverse Event Reporting System (VAERS) is a national vaccine safety surveillance program co-sponsored by the Centers for Disease Control and Prevention (CDC) and the Food and Drug Administration (FDA).
U.S. Department of Health and Human Services (HHS)
www.dhhs.gov
The U.S. Department of Health and Human Services (HHS) is the U.S. government’s principal agency for protecting the health of all Americans and providing essential human services. The web site contains information on the departments numerous federal programs.
U.S. Department of Labor, Employment Standards Administration, Wage and Hour Division
www.dol.gov
The U.S. Department of Labor’s Employment Standards Administration, Wage and Hour Division, administers and enforces the Family and Medical Leave Act (FMLA) for all private, state and local government employees, and some federal employees. FMLA entitles eligible employees to take up to 12 weeks of unpaid, job-protected leave in a 12-month period for specified family and medical reasons. Detailed information about FMLA is available at this website.
Centers for Medicare and Medicaid Services
www.cms.hhs.gov
This organization is the federal agency that administers Medicare, Medicaid and the State Children’s Health Insurance Program (SCHIP). The web site provides information on these programs and contains the initiatives put out by the Department of Health and Human Services such as the “Health Insurance Portability and Accountability Act.” It also lists the state health insurance commissioners, which can be helpful in seeking health insurance assistance.
National Institute of Allergy and Infectious Diseases (NIAID)
www.niaid.nih.gov
Office of Communications Telephone: (301) 496-5717
The National Institute of Allergy and Infectious Diseases (NIAID) is a division of NIH that provides information about allergy and infectious diseases, and primary immunodeficiency diseases to the public.
U.S. Equal Employment Opportunity Commission (EEOC)
www.eeoc.gov
Telephone: (800) 669-4000
The federal agency whose mission is to promote equal opportunity in employment through administrative and judicial enforcement of the federal civil rights laws and through education and technical assistance. The web site contains information on the agency, its current activities and legislative documents such as “The Americans with Disabilities Act,” which protects civil rights in the areas of employment, public accommodation, transportation and telecommunications for people with disabilities, including developmental disabilities.