Patient-Reported Statistics

What is PICONNECT?

PI CONNECT is the Immune Deficiency Foundation’s Patient-Powered Research Network.

It connects information entered into IDF ePHR, the electronic personal health record for patients with PI, with data in the USIDNET registry to create multi-dimensional data sets. PI CONNECT is funded by an award from the Patient-Centered Outcomes Research Institute (PCORI).

Enrollment Statistics Coming Soon!