Within the USIDNET registry, thousands of clinical, molecular, and laboratory data points are collected from patients with primary immunodeficiency diseases (PI) in the United States and Canada. The validated, de-identified data is freely disseminated to those with research questions. There are several different ways that you can view registry data, and we invite you to explore the options below.
Explore Our Data Now!
Information is updated in real time and available to download without a formal query.
The United States Immunodeficiency Network (USIDNET) is funded by a cooperative agreement, U24AI086037, from the National Institute of Allergy and Infectious Diseases (NIAID) and the National Institutes of Health (NIH), awarded to the Immune Deficiency Foundation (IDF). NIAID supports basic and applied research to better understand, treat and ultimately prevent infectious, immunologic, and allergic diseases. We also thank our partners from Industry, Foundations and philanthropy for continued and generous support.