Registry Data and Queries

Within the USIDNET registry, thousands of clinical, molecular, and laboratory data points are collected from patients with primary immunodeficiency diseases (PI) in the United States and Canada. The validated, de-identified data is freely disseminated to those with research questions. There are several different ways that you can view registry data, and we invite you to explore the options below.

Explore Our Data Now!

Information is updated in real time and available to download without a formal query.

Request a Custom Dataset!

Registry queries answer specific questions about primary immunodeficiencyPI.