Data Collection Forms

Data Collected from Medical Records

Below you can find paper versions of all case report forms within the USIDNET online registry. These forms are meant to serve as a reference for enrolling sites and are not required for online submission.

Core Report Forms

The Core Report Forms are used to collect data on all participants in the USIDNET registry.

Disease-Specific Forms

For the diagnoses listed in this section, we will ask you to complete some additional questions on a disease-specific form.

FILL Forms

FILL-specific data collection forms have been designed to capture both the “Core” set of data as well as specific data fields at multiple time points for qualifying FILL infants. For more information about the Following Infants with Low Lymphocytes (FILL) program, click here.