The United States Immunodeficiency Network (USIDNET), an NIH-funded research program of the Immune Deficiency Foundation (IDF), was established to advance scientific research in primary immune deficiency diseases (PI) and specifically to:
The USIDNET is governed by a Steering Committee of top physicians.
USIDNET Patient Registry
As of 10/17/2016, total registration includes 6,085 participants. This includes 1,600 consented participants awaiting a clinician-confirmed diagnosis.
Below, you will find a breakdown of participants with a clinician-confirmed diagnosis.Please visit this page for a more compreshensive breakdown of USIDNET database statistics.