U.S. Immunodeficiency Network
The United States Immunodeficiency Network (USIDNET), an NIH-funded research program of the Immune Deficiency Foundation (IDF), was established to advance scientific research in primary immune deficiency diseases (PI) and specifically to:
- Assemble and maintain a registry of validated data from patients with PI in order to provide a comprehensive picture of each disorder and act as a resource for clinical and laboratory research.
- Maintain an open and unrestricted central repository of rare materials, such as cell lines derived from samples of patients with PI.
- Provide multifaceted mentoring programs to introduce new investigators into the field and stimulate interest and research in primary immunodeficiency diseases.
- Assist highly qualified junior faculty or committed senior fellows for travel grants to attend focused PI meetings.
- Interface with the Disease-specific Working Groups (DSWG) to foster novel research initiatives.
- Launch the new initiative for collecting data on infants with abnormal newborn screening.
- Engage the patient community through services such as the eHealthRecord.
The USIDNET is governed by a Steering Committee of top physicians.