The United States Immunodeficiency Network (USIDNET), an NIH-funded research program of the Immune Deficiency Foundation (IDF), was established to advance scientific research in primary immune deficiency diseases (PI) and specifically to:
The USIDNET is governed by a Steering Committee of top physicians.
USIDNET Patient Registry
As of 11/15/2016, total registration includes 6,131 participants, including 1,592 PICONNECT participants awaiting a clinician-confirmed diagnosis
Below is a breakdown of participants with clinician-confirmed diagnoses
For more USIDNET database statistics, visit this page.