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Our Story

The United States Immunodeficiency Network (USIDNET) is a research consortium established to advance scientific research in the field of primary immunodeficiency diseases (PI) by assembling and maintaining the only registry of clinical data from patients with PI, providing education and mentoring for young investigators and physicians in the field of PI, and acting as a resource for clinical and laboratory research.

Current Enrollment

Take a look at our current patient enrollment! Want to see more? On our Registry Data Statistics page, you can explore the registry population's demographics, diagnoses, and treatments.

This information is updated in realtime and is available to download without submitting a formal query.

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What's New with USIDNET?


A new approach to reviewing and evaluating registry datasets The United States Immune Deficiency Network (USIDNET) is excited to unveil…

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USIDNET is proud to announce its support for 11 highly-qualified junior researchers to attend the 2018 Clinical Immunology Society (CIS)…

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USIDNET is pleased to announce our NEW software platform for the registry! USIDNET has contracted with nPhase Inc to use…

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